To be more specific, my question about uticaria is this.?

in the ER i was given benedryl and low dose prednisone. when i seen my regular doctor he said to continue with those meds and said i was alergic to my hair care products.i discontinued those.a few days later i was back in the ER with unbarable stomach cramps and hives that caused deep tissue pain. there they ran some tests for autoimmune diseases. ulrasounds and ct scans. i was given 2 more meds to take with the other 2 one for pain and one more antihistamine. back at my family phys., he refers me to an alergist but it will be two weeks before he can see me. one more time in the ER, one more medicaton. then one night i fell asleep early on the couch with my 9 yr old daughter under my arm, where i stayed all night untill my 19 yr old woke me in the morning to get them off to school. when i sat up. i couldnt open my eyes and when i tried to stand my feet felt huge my skin was hot all over i felt intense pain all over and i could hardley speak. i fell to the floor and was able to mumble " go tell dad that i am dying " i did not have any itching but was one solid hive from head to toe and swollen from top to bottom. i remember my husband picking me up and running out the door. but was in and out of conciousness all the way to the hospital. where i was given a shot of epi then another and something else in my i.v. and a breathing tube was put down my throat. the nurse never left my room untill i was stable. i had a very severe anaphylactic reaction. they said i was very close to death when i came in. the tought of almost dying with my baby under my arm horrified me to say the least. i left the ER that time with a total of 8 meds and an epi pen. for one week i eliminated foods and soaps, casmetics ect. untill i was down to only crackers and water still doing this along with all the meds i would still get some mild hives daily. then when it came time to see the alergist i couldnt because of all the meds i was on. then the next biggy, it is 5 weeks before i get in to the alergist. and meanwhile my pharmasist has a fit because of how long and how much of one of my meds i was taking. dexamethasone 6 miligrams daily for the last 7 weeks. then when i start asking my doctors about this med and am now having mayjor side effects from. one by one they refuse to see me. one doctor said that his brother was on dexamethasone for 11 days last yr and was taking 0.75 miligrams everyother day and died from the medicine. i had tripled in size, i had a hump on my back, whiskers on my chin, bone pain in my legs, i was loosing my eye sight, i started to get a whole in my stomach i got high blood pressure and now there was concern that my adrenal glands would not function again and that coming off the med could cause heart failure. and a host of other things. like the whole time i was on this med i was at risk of dying from even a simple cold. i am off the dexamethasone now for about 3 months with no major complications have had all my alergy tests and they were all fine. but i am still having to take very high doses of three allergy meds that are very expensive and i need them for the rest of my life. and they barely keep the hives at bay.. all my doctors say its unknown cause.. i am wondering if there is another kind of doctor that may help me. like maybe an edocronologist. there has to be some reason this is happening to me.. my little girl is so scared that i am going to die. she is always worried and asking " did you take your medicine mommy? " i dont want to take all these meds for the rest of my life and live in fear that i will have another bad reaction because i dont know whats causing it. i am only 45 and i have been healthy all my life.